New national survey to ask bereaved relatives about end-of-life care provided to their loved ones

In this video, Donnacha O’ Ceallaigh, Project Lead on the National Care Experience Programme team, talks about the new National End of Life Survey. This survey will ask bereaved relatives about the care provided to their loved ones in the last months and days of their lives. The purpose of this survey is to learn from people’s experiences of end-of-life care and find out what is working well and what improvements are needed.

Bereaved relatives or friends who register the death of a loved one that occurred between September and December 2022 will receive the survey in the post between March and May 2023.

The survey contains questions on end-of-life care provided in hospitals, hospices, nursing homes and people’s homes. The questions cover pain management, respect and dignity, emotional support, communication with healthcare staff and the provision of information.

The National End of Life Survey is part of the National Care Experience Programme – a partnership between HIQA, the HSE and the Department of Health.

You can find more information about the National End of Life Survey on our website www.yourexperience.ie or by following us on Twitter, Instagram and Facebook @careexperience.

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