The National End of Life Survey is the first time that Ireland will hear about the experience of care in a person’s last months of life. Bereaved relatives, which can include the closest relatives or friends of those who have died, will be invited to tell us about the experience of end-of-life care from their perspective. The findings will be used to improve care services, inform regulation, national policies and standards. This survey is currently being developed with the aim to survey bereaved relatives in 2022.

Development of Questionnaire

The National End of Life Survey questionnaire is currently being developed. From the end of March to June 2021, we will be conducting focus groups and a Delphi Study. If you are interested in becoming involved, please email us at info@yourexperience.ie. Click below to learn more about what is involved in developing the questionnaire in 2021.

View steps to develop questionnaire

Any questions about the National End of Life Survey?

Please contact the survey team.

Resources for bereaved relatives

The HSE, in partnership with the Irish Hospice Foundation, provides a bereavement support helpline to support people who have experienced the death of a family member or friend. You can call the bereavement support freephone service on 1800 80 70 77 to talk to a bereavement support volunteer. The telephone service is available from 10am to 1pm, Monday to Friday.

If you would like to talk to a healthcare professional you could make an appointment with your GP (doctor).

The HSE ‘Bereavement when someone close dies’ booklet provides information about grieving and includes contact details for bereavement services.