The National End of Life Survey will be the first national survey asking bereaved relatives about the care provided to a family member or friend in the last months and days of their life.

The purpose of the survey is to learn from people’s experiences of end-of-life care in order to improve the services provided both to people who are dying, and to their loved ones.

Individuals who register the death of a family member or friend that occurred between 1 September and 31 December 2022 will be invited to participate in the survey and will receive a survey pack in the post between March and May 2023.

The findings of this national survey will provide valuable information on the standard of care provided at end of life, acknowledging what is working well and identifying areas where improvements are needed.

What questions are asked?

The National End of Life Survey contains 110 questions, which have been determined following a rigorous selection process. Click below to learn more about what is involved in conducting the survey and to view the questionnaire.

View survey model

Any questions about the National End of Life Survey?

Read our frequently asked questions or contact the survey team.

The Survey timeline

Eligibility period and criteria

Individuals who register the death of a family member or friend (aged 18 or over) between 1 September and 31 December 2022 will be invited to participate in the survey. On this occasion, maternal, sudden or accidental deaths are outside the scope of the survey.

Laptop with imcoming emails

Survey goes live

Eligible participants will receive an invitation letter and a survey questionnaire in the post between March and May 2023.

Online and paper survey

Survey closes and results are analysed

The results are then analysed and the reports are prepared for publication.

Computer analyzing data

Results published

Survey findings are published on yourexperience.ie.

Leaflet with analyzed data

Quality Improvements

The HSE and healthcare services respond to the survey results by developing quality improvement initiatives.

A stethoscope
Arrow for dropdown menu

Eligibility period and criteria

Individuals who register the death of a family member or friend (aged 18 or over) between 1 September and 31 December 2022 will be invited to participate in the survey. On this occasion, maternal, sudden or accidental deaths are outside the scope of the survey.

Arrow for dropdown menu

Survey goes live

Eligible participants will receive an invitation letter and a survey questionnaire in the post between March and May 2023.

Arrow for dropdown menu

Survey closes and results are analysed

The results are then analysed and the reports are prepared for publication.

Arrow for dropdown menu

Results published

Survey findings are published on yourexperience.ie.

Arrow for dropdown menu

Quality Improvements

The HSE and healthcare services respond to the survey results by developing quality improvement initiatives.

Resources for bereaved relatives

The HSE, in partnership with the Irish Hospice Foundation provides a helpline to support people who have experienced the death of a family member or friend. You can call this Freephone service on 1800 807077 to talk to a bereavement support volunteer. This service is available from 10am – 1pm, Monday to Friday.

If you would like to talk to a healthcare professional you could make an appointment with your GP (doctor).

The below HSE booklet provides information about grieving and includes contact details for bereavement services.

Bereavement when someone close dies