The National End of Life Survey will be the first time that Ireland will hear about the experiences of care provided to those that have died and their relatives. Bereaved relatives, who can include the closest relatives or friends of those who have died, will be invited to tell us about the experience of care at end of life.

The person who registered the death of an adult who died between 1 September 2022 to 31 December 2022 will be invited to take part in the National End of Life Survey. This person will receive a survey pack in the post no earlier than 3 months following the person’s death in early 2023.

The findings of this national survey will be used to drive service improvements in care at end of life, acknowledging what is working well and identifying areas where improvements are needed. The findings will also be used to inform regulation, national policies and standards.

Development of Questionnaire

The National End of Life Survey questionnaire has been developed following a rigorous selection process and includes questions on the key aspects of care experience in the last months and days of life. Click below to learn more about what is involved in developing the survey questionnaire.

View steps to develop questionnaire

Any questions about the National End of Life Survey?

Please contact the survey team.

The Survey timeline

1 September to 31 December 2022

Eligibility period and criteria

Adults who die between 1 September 2022 to 31 December 2022 will be included. People who die suddenly, for example in an accident or by suicide will not be included. 

Laptop with imcoming emails
January to May 2023

Survey goes live

Eligible bereaved relatives receive a survey by post no earlier than three months following the death of their family member or friend.  

Online and paper survey
May to August 2023

Survey closes and results are analysed

The results are then analysed and the reports are prepared for publication.

Computer analyzing data
Autumn 2023

Results published

One national report and reports for different health services that provide care at end of life will also be published.

Leaflet with analyzed data
Autumn 2023

Quality Improvements

The HSE and healthcare services respond to the survey results by developing local quality improvement initiatives.

A stethoscope
1 September to 31 December 2022
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Eligibility period and criteria

Adults who die between 1 September 2022 to 31 December 2022 will be included. People who die suddenly, for example in an accident or by suicide will not be included. 

January to May 2023
Arrow for dropdown menu

Survey goes live

Eligible bereaved relatives receive a survey by post no earlier than three months following the death of their family member or friend.  

May to August 2023
Arrow for dropdown menu

Survey closes and results are analysed

The results are then analysed and the reports are prepared for publication.

Autumn 2023
Arrow for dropdown menu

Results published

One national report and reports for different health services that provide care at end of life will also be published.

Autumn 2023
Arrow for dropdown menu

Quality Improvements

The HSE and healthcare services respond to the survey results by developing local quality improvement initiatives.

Resources for bereaved relatives

The HSE, in partnership with the Irish Hospice Foundation, provides a bereavement support helpline to support people who have experienced the death of a family member or friend. You can call the bereavement support freephone service on 1800 80 70 77 to talk to a bereavement support volunteer. The telephone service is available from 10am to 1pm, Monday to Friday.

If you would like to talk to a healthcare professional you could make an appointment with your GP (doctor).

The HSE ‘Bereavement when someone close dies’ booklet provides information about grieving and includes contact details for bereavement services.

Information about bereavement & bereavement supports